News - Albinism Europe

Details: News; 10 July 2019; Hits: 5393

Albinism Europe attended Globalskin conference

On June 7th - 9th 2019 some representatives of Albinism Europe, as partner of The International Alliance of Dermatology Patient Organizations (IADPO) – also known as GlobalSkin – attended the dedicated conference that took place in Milan, Italy, right ahead the World Congress of Dermatology.

This is a unique global alliance serving patient-organizations to improve the lives of dermatology patients worldwide. There were over 100 patient-association members from 39 countries, representing more than 40 skin conditions.

Details: News; 08 April 2019; Hits: 4333

1st French scientific conference on albinism (2019)

On April 5^th, 2019 the 1^st French scientific conference dedicated to albinism took place in Bordeaux – aka JFA (Journée Française de l’Albinisme).

Details: News; 31 March 2019; Hits: 2341

Short report of the event “Albinism in Africa” on 30-3-2019

Oogvereniging Albinisme organized an event on the 30th of March about the theme: Albinism in Africa. This interesting day took place in a fitting meeting venue: the beautiful “Africa Museum” in Berg en Dal, the Netherlands. During the moving presentations, there was a special workshop for little children. They had a good time by making lovely African clay cabins.

Details: News; 15 February 2019; Hits: 2630

"Living In The Shadow" Amsterdam Under the name ‘Living in the Shadow’ different experts on albinism discussed the human rights of people with albinism on February 9th in Amsterdam, the Netherlands. Lisa Luchtenberg, chair of Oogvereniging Albinisme (Dutch patient group for people with albinism), held a short presentation and was part of the panel discussion during the albinism session. ‘Inclusion’ was the key word of this afternoon.