International group of 24 people before climbing mount Kilimanjaro

Photo from jtfe.org

In September 2018 an international group of 24 people climbed mount Kilimanjaro to raise awareness of the issues faced by people with albinism in Africa. Hugo and Lisa, two Dutch people with albinism (Oogvereniging Albinisme), joined them on this journey.

Albinit anual meeting September 2018

At the end of September the Italian Association Albinit held our annual meeting in the beautiful surrounding of Montelupo Fiorentino, This year was a very special occasion as we celebrated the 10th Anniversary of the Association. 

The 2 intensive days were full of important updates on scientific research and on the association activities, but also lots of entertainment. It is a wonderful feeling being together with all the members of our big family!

ALBA 2018 Conference

During the weekend of September 29-30 2018, ALBA held the XII ALBA Conference on Albinism, entitled "Breaking Myths", in San Rafael (Segovia). The ALBA albinism days are the annual meeting and serve as a meeting point for people with albinism, their families and researchers to learn, teach and share experiences about this genetic condition. This year it broke all attendance records with more than 230 participants and 95 families.

Albinism Summer Camp in Ireland

From July 29 to August 7, 2018, the first summer camp for young Europeans with albinism was held in Ireland. The project entitled "TRAINING YOUTH WITH ALBINISM LEADERS: IMPROVING THE INCLUSION IN EUROPE" was funded by the Erasmus + program of the European Commission and was coordinated by "ALBA-Asociación de ayuda a personas con albinismo" with the participation of associations of people with albinism of the following countries: Norway, Denmark, Italy, Turkey and France, as well as the support company in Ireland “Irelands & Families”.